Ethical Issues in Community and Patient Stakeholder-Engaged Health Research

Anderson, Emily E.

Ethical Issues in Community and Patient Stakeholder-Engaged Health Research

相關主題

商品描述

This book provides in-depth analyses of a wide range of topics surrounding ethical issues in community and patient stakeholder-engaged health research, and highlights where consensus exists, is emerging, or remains elusive. Topics in this book cover the history of stakeholder engagement in health research; how codes of ethics and regulations have (or have not) addressed stakeholder engagement; how to promote equitable collaboration; the ethical perspectives of different stakeholders; and the unique challenges posed by stakeholder- engaged research to the protection of human research participants and the research ethics review process. The book includes discussion of unique issues that arise in stakeholder engagement relevant to different populations, settings, and research designs. This book is relevant for anyone with a role or interest in stakeholder-engaged research, including patient and community research partners; academic researchers; research ethics scholars and educators; and funders.

商品描述(中文翻譯)

本書深入分析了與社區及患者利益相關者參與的健康研究中的倫理問題，並強調了共識存在、正在形成或仍然難以捉摸的地方。本書的主題涵蓋了健康研究中利益相關者參與的歷史；倫理準則和法規如何（或未能）處理利益相關者參與；如何促進公平的合作；不同利益相關者的倫理觀點；以及利益相關者參與的研究對保護人類研究參與者和研究倫理審查過程所帶來的獨特挑戰。本書還討論了在不同人群、環境和研究設計中，與利益相關者參與相關的獨特問題。本書對於任何在利益相關者參與研究中有角色或興趣的人都具有相關性，包括患者和社區研究夥伴；學術研究者；研究倫理學者和教育者；以及資助者。

作者簡介

Emily E. Anderson, PhD, MPH, is Professor in the Neiswanger Institute for Bioethics and Healthcare Leadership at Loyola University Chicago's Stritch School of Medicine. Dr. Anderson holds a PhD in health care ethics from Saint Louis University and an MPH from University of Illinois Chicago. She teaches courses on research ethics and responsible conduct of research to bioethics and biomedical sciences graduate students as well as medical students. In addition to the ethics of stakeholder engagement in research, her areas of interest and expertise include researcher and physician professionalism and misconduct; ethical issues in research with vulnerable populations; informed consent; institutional review board (IRB) policy; and the application of qualitative research techniques to the study of research ethics. She has published over 50 articles in top journals including the American Journal of Bioethics, Journal of Law, Medicine, and Ethics, Academic Medicine, and IRB: Ethics & Human Research. Dr. Anderson currently serves as associate editor of Narrative Inquiry in Bioethics. Dr. Anderson has been a co-investigator on several federally-funded research and educational projects and recently co-authored the book 100 Questions and Answers about Research Ethics (Sage Publications, 2018) with Dr. Amy Corneli (at Duke University).

作者簡介(中文翻譯)

艾蜜莉·E·安德森（Emily E. Anderson），博士，公共衛生碩士（MPH），是芝加哥洛約拉大學斯特里奇醫學院尼斯旺格生物倫理與醫療領導研究所的教授。安德森博士擁有聖路易斯大學的醫療倫理博士學位及伊利諾伊大學芝加哥分校的公共衛生碩士學位。她教授生物倫理及生物醫學科學研究生以及醫學生有關研究倫理和負責任的研究行為的課程。除了研究中利益相關者參與的倫理外，她的興趣和專長領域還包括研究者和醫生的專業性與不當行為；與弱勢群體進行研究的倫理問題；知情同意；機構審查委員會（IRB）政策；以及質性研究技術在研究倫理研究中的應用。她在《美國生物倫理期刊》、《法律、醫學與倫理期刊》、《學術醫學》和《IRB：倫理與人類研究》等頂尖期刊上發表了超過50篇文章。安德森博士目前擔任《生物倫理敘事研究》的副編輯。安德森博士曾擔任多個聯邦資助的研究和教育項目的共同研究者，並最近與杜克大學的艾米·科爾尼博士共同撰寫了《研究倫理的100個問題與答案》（Sage Publications, 2018）一書。

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