Consumer Health Informatics: Enabling Digital Health for Everyone
暫譯: 消費者健康資訊學：為每個人啟用數位健康
Smith, Catherine Arnott, Keselman, Alla
- 出版商: CRC
- 出版日期: 2020-12-14
- 售價: $5,230
- 貴賓價: 9.5 折 $4,969
- 語言: 英文
- 頁數: 250
- 裝訂: Hardcover - also called cloth, retail trade, or trade
- ISBN: 1138337455
- ISBN-13: 9781138337459
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商品描述
"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints."
-- Betsy L. Humphreys, former Deputy Director, National Library of Medicine
This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health.
Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices.
This book's unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
商品描述(中文翻譯)
「這是一本針對希望設計或推廣資訊科技，以幫助人們在醫療保健中成為更積極和知情參與者的讀者而寫的書。主題包括病人入口網站、可穿戴設備、應用程式、網站、智慧家庭以及專注於健康的線上社群。」
-- Betsy L. Humphreys，前美國國家醫學圖書館副館長
消費者健康資訊學：為每個人啟用數位健康 教育讀者消費者健康資訊學的核心概念：參與式醫療；健康與電子健康素養；以使用者為中心的設計；資訊檢索與可信的資訊資源；以及健康資訊和通訊科技的倫理維度。它呈現了消費者健康資訊學領域的當前知識狀態和最近發展。討論針對關鍵使用者群體量身定制資訊，包括病人、消費者、照顧者、父母、兒童和年輕成年人，以及老年人。例如，應用程式不僅被視為一種豐富的消費者科技，承諾賦予個人數據管理的能力和與社區及醫療提供者的連結，還是一個充滿有效性、隱私和安全性擔憂的領域，要求設計者和使用者對他們的選擇進行批判性思考。
這本書對該領域的獨特貢獻在於其專注於消費者和病人在臨床環境之外的日常生活中的背景。對工具和技術的討論是基於這一視角以及實際使用的背景及其對設計的影響。強調通過參與式和以人為中心的護理來賦權。」
作者簡介
Catherine Arnott Smith, PhD, is a Professor in the Information School and a Discovery Fellow, Virtual Environments Group, Wisconsin Institutes for Discovery, University of Wisconsin-Madison. She is a former medical librarian who moved into biomedical informatics for her PhD through the Center (now Department) of Biomedical Informatics at the University of Pittsburgh (2002), where she was a National Library of Medicine medical informatics predoctoral trainee. Her research centers on consumer interactions with clinical information systems, mediated through text, in settings that range from patient portals to public libraries to disabilities support centers.
Alla Keselman, PhD, is a Senior Social Science Analyst in the Office of Engagement and Training, National Library of Medicine, Bethesda, MD. She holds a PhD in human cognition and learning and an MA in biomedical informatics from Columbia University. Dr. Keselman coordinates NLM efforts in evaluating the impact of its health information outreach and community engagement programs. Her research interests include lay understanding of complex health concepts, scientific literacy, and the provision of health information outside clinical settings. She has done work on bringing health and environment-related topics to the science classroom and conducted research into the role of libraries in providing health information to the public.
作者簡介(中文翻譯)
Catherine Arnott Smith, PhD 是威斯康辛大學麥迪遜分校資訊學院的教授及虛擬環境小組的Discovery Fellow。她曾是一名醫學圖書館員，後來在匹茲堡大學的生物醫學資訊中心（現為生物醫學資訊系）獲得博士學位（2002年），並曾是國家醫學圖書館的醫學資訊博士前期訓練生。她的研究重點在於消費者與臨床資訊系統的互動，這些互動透過文本媒介，涵蓋的範疇包括病人入口網站、公共圖書館及殘障支援中心等環境。
Alla Keselman，PhD，是國家醫學圖書館（National Library of Medicine）參與與培訓辦公室的高級社會科學分析師，位於馬里蘭州的貝塞斯達。她擁有哥倫比亞大學的人類認知與學習博士學位及生物醫學資訊碩士學位。Keselman博士協調國家醫學圖書館在評估其健康資訊推廣及社區參與計畫影響方面的工作。她的研究興趣包括大眾對複雜健康概念的理解、科學素養，以及在臨床環境之外提供健康資訊。她曾致力於將健康與環境相關主題引入科學課堂，並進行研究探討圖書館在向公眾提供健康資訊方面的角色。
